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The postpartum hospital discharge instructions that failed me — and could fail the next mother

Much of what new mothers are told before they head home varies enormously. A standardized system to help identify complications is needed — and Philly-area nurses and physicians can lead the way.

Although nurses provide some form of postpartum discharge education to all women who give birth, the information is not always consistent or evidence-based, Casey Keen writes.
Although nurses provide some form of postpartum discharge education to all women who give birth, the information is not always consistent or evidence-based, Casey Keen writes.Read moreFizkes / MCT

I left the hospital holding my newborn son with a folder of paperwork and almost no real understanding of what had just happened to my body.

I’d gone through a birth that didn’t go as planned, including a panic attack on the operating table, and in the days and weeks that followed, I developed postpartum preeclampsia, birth trauma, and postpartum depression and anxiety.

No one had walked me through what warning signs mattered, or what was simply the ordinary exhaustion of new motherhood. I had to figure that out myself, slowly, while sleep-deprived and caring for an infant. I live in Doylestown, and the more I’ve researched this since, the more I’ve come to see my discharge experience as the norm rather than the exception.

The structural problem is that much of what a new mother is told on her way out of the hospital varies enormously depending on which nurse is on shift, which hospital she delivered at, and how rushed that particular day happened to be.

Although nurses provide some form of postpartum discharge education to all women who give birth, the information women receive on common potential complications is not always consistent or evidence-based. The consequences of that inconsistency are measurable, not theoretical.

The Association of Women’s Health, Obstetric and Neonatal Nurses has already tested a fix. Its POST-BIRTH Warning Signs program walks patients through nine specific warning signs of severe maternal morbidity, paired with a take-home checklist of exactly whom to call and when.

In a pre- and post-evaluation, patients who received this standardized discharge education demonstrated meaningfully better knowledge of warning signs compared with patients who received typical, inconsistent discharge conversations. The program was built due to a troubling pattern: highly educated patients experiencing clear warning signs didn’t seek care because they assumed what they were feeling was normal after having a baby.

This is where Philadelphia-area hospitals have a real opportunity. I’ve spent recent months in conversation with Doylestown Hospital and other regional providers about exactly this gap, because the system they’re working within doesn’t require a consistent standard.

Bucks County and the broader Philadelphia suburbs don’t need to wait for a national mandate to adopt something like the POST-BIRTH Warning Signs model regionally. A hospital system here could decide, on its own, that every postpartum patient leaves with the same standardized, risk-specific information regardless of which floor she delivered on or which nurse was on shift that day.

What would that actually require? First and foremost, it means adopting a standardized discharge script and checklist, already developed and tested, rather than leaving the conversation to individual discretion.

It also entails making that information risk-specific, telling a patient with a hypertensive disorder of pregnancy exactly what kind of headache warrants an urgent call, rather than a generic instruction to reach out “if something feels wrong,” and treating consistent discharge education as a real quality and safety metric for regional hospital systems to track.

If you’re expecting or have recently given birth in this region, ask your hospital directly what its discharge education actually covers, and whether it’s standardized across providers.

If you sit on a regional hospital board or quality committee, this is a low-cost, already tested fix that doesn’t require waiting on federal guidance.

The five minutes before a patient walks out the hospital door deserve the same seriousness as everything that happens before — and that’s a standard Philadelphia-area hospitals could set on their own.

Casey Keen is a Doylestown resident and author of “The Alchemy of Motherhood: Unspoken Truths of Birth Trauma and the Postpartum Journey.” Her work appears in Undark magazine and Postpartum Alchemy, her Substack.