Philly woman surprised to find herself in Penn study
A Philadelphia woman with unusually high "good" cholesterol levels was the impetus for a University of Pennsylvania research study published this year.
But she did not realize that until after the research was described in a Philadelphia Inquirer article.
Like the study itself, the newspaper article mentioned a 67-year-old woman and her cholesterol levels without further identifying details. The Penn researchers described why high levels of HDL good cholesterol are not necessarily a benefit.
The woman did not initially think she was the unnamed patient.
Later she realized the study was indeed referring to her, after reading a second account of the research in Science magazine.
Should the study authors have notified her that her case was going to be in the news?
She describes her feelings here.
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