The Delaware Valley chapter of the National Hemophilia Foundation has received a grant to advance and promote the Hemophilia Standards of Care Act within the Pennsylvania legislature.
The Delaware Valley chapter will be getting $25,000 to be used for a legislative consultant on retainer, cost for bringing supporters to Harrisburg and materials being used to urge support of House Bill 1105, which would provide a standard of care for the treatment of people with bleeding disorders. A companion bill has been introduced in the Senate.
This was one of five grants semi-annual grants, totaling more than $65,000, given to patient advocacy organizations in the United States by CSL Behring, a King of Prussia maker of plasma protein therapies.
The company has awarded more than $150,000 in local-empowerment grants for grassroots advocacy efforts to help people needing plasma-derived and recombinant therapies.