Today it is one year since my limb salvage surgery, pretty much the scariest day of my life. It's also one year now that I'm cancer free.
When I went in to surgery last year, I was afraid that I wouldn't wake up and if I did, my right leg would be gone.
As much as Dr. Dormans and Dr. Balamuth told me that my leg wasn't going to be cut off, I was afraid. After my surgery, Dr. Dormans took my parents in a small room outside the surgical waiting room and told them that my surgery went beautifully. Exactly as he and his team had planned. My parents both cried a bit (that's what they told me), but still listened to every detail.
I had to wear a brace for two months after my surgery. Not much fun. The day I got my brace off (it was in July) I remember walking around the hospital until I was just too tired to walk any more. It was a great feeling, but I had a long way to go with chemotherapy and physical therapy to build my strength and learn how to walk properly on my shiny new endo-prosthetic leg bone (femur). I had to go from Dr. Dormans office at Children's Hospital of Philadelphia over to oncology because I was going to start a five day round of chemotherapy before I could go home.
I remember going home that first time without that stupid brace on. It felt really good to be able to get around and do simple personal things by myself that I couldn't do with my brace on. I also went in the pool as soon as I got home. What a great feeling. Once I was in the water I felt like I was getting my life back, even though I still had several rounds of chemotherapy to go.
Swimming has been a big part of my road to recovery. My physical therapist tells me that my swimming has been really helpful in gaining strength back in my leg. I'm back with my swim team. My coaches are good about easing me back in to the program and not making me feel like I'm slowing the rest of the team down. Our head coach, Paul Buerck, is a big supporter of helping kids get back on their feet after fighting cancer.
There are other kids that swim with the Barracudas that are Ewing's Sarcoma survivors like me. One is my friend Lilly Daneman, who had Ewing's before me. Lilly and her Mom and Dad were with us as I went through treatment and have been a big help to me and my family getting through this.
My friend Matt Pilla, is another Ewing's survivor. I met Matt when he was at CHOP for scans after he finished treatment and I was in for a round of chemotherapy. Matt's Dad and my Mom worked together for years, but this was the first time I met Matt. We became good friends and stayed in touch playing games on line and texting once in a while.