Silenced by fear
Women of color are less likely to get treatment for postpartum depression because they fear they’ll be judged too quickly or harshly by child welfare services. Research shows those fears may be justified.
This story is a collaboration between The Inquirer and WHYY Health + Science.
Portia Smith’s most vivid memories of her daughter Nelly’s first year are of tears. Not the baby’s. Her own.
“I would just hold her and cry all day,” Smith recalled.
At 18, Smith was caring for two children, 4-year-old Kelaiah and newborn Nelly, with little help from her abusive partner. The circumstances were difficult, but she knew the tears were more than that.
“I really didn’t have a connection for her,” said Smith, now a 36-year-old motivational speaker and mother of three living in Philadelphia’s Overbrook neighborhood. “I didn’t even want to breastfeed because I didn’t want that closeness with her.”
But Smith couldn’t bring herself to ask for help.
“You’re afraid to say it because you think the next step is to take your children away from you,” she said. “You’re young and you’re African American so it’s like she’s going to be a bad mom.”
Smith’s concern is echoed by many women of color who suffer from postpartum depression. Maternal health experts say women often choose to struggle on their own rather than seek care and risk having their families torn apart by child-welfare services.
Postpartum depression affects one in seven women. In March, the Food and Drug Administration approved the first drug specifically for postpartum depression. A month earlier, the U.S. Preventive Services Task Force released new guidelines recommending screening for depression in all pregnant and postpartum women and referring those at risk to counseling.
But those advances help only if women in need are identified in the first place — a particular challenge for women of color and low-income moms, research shows, as they are several times more likely to suffer from postpartum mental illness, but less likely to receive treatment.
“There’s a real opportunity to help women,” said Laura Line, a health-care consultant who specializes in maternal mental health. But, too often, clinicians miss the signs.
When Auriel Dickey returned to work after having her daughter two years ago, she felt a profound sense of loss.
“At my desk, I’d just break down and cry,” said the 27-year-old from Germantown. “Sometimes I would be talking to my boss and I would have this impulse like, ‘I quit!’ ”
“Sometimes I would be talking to my boss and I would have this impulse like, ‘I quit!’ ”
The feeling persisted for months. It was more than separation anxiety. But Dickey was terrified to tell anyone.
Even today, when mental-health discussions are becoming more common, she knew uttering the words “postpartum depression” could lead people to assume she was an unfit mom, a risk to her child.
When that fear causes women to delay or avoid care, it can have serious consequences, Line said.
Poor mental health can lead to deteriorating physical health, too. In the United States, mental-health problems are among the main contributors to maternal mortality. In Philadelphia, 25 of the 55 new moms who died between 2010 and 2012 had a history of mental illness, according to the city’s maternal mortality review committee.
Untreated mental illness can even result in postpartum suicides, which, though rare, still comprise the second leading cause of maternal mortality in developed nations.
After months of suffering, Dickey and Smith both reached breaking points that pushed them to get care. But their challenges didn’t end there.
‘I was lying to you'
Smith had her first child at age 14. Down the hall from her hospital room, another young black woman had twins.
“I watched those kids get wheeled down the hall,” Smith recalled. “I saw her screaming.”
Smith never confirmed what happened, but she concluded that the children were being given to another family. The memory created a sense of dread that would stick with her for years.
For many women of color, the fear of child-welfare services comes from seeing and hearing of incidents in their community.
“This is lived experience,” said Alfiee Breland-Noble, an associate professor of psychiatry at Georgetown University Medical Center, who specializes in depression in minority populations.
Studies in several states and at the national level have found child-welfare workers deem black mothers unfit at a higher rate than white mothers, even when controlling for such factors as education and poverty.
The result is a disproportionate number of black youth in the foster-care system — a pronounced issue in Philadelphia, where black children account for 66 percent of those in that system, even though they represent 49 percent of the city’s children.
At a recent Philadelphia City Council hearing, parents and child-welfare advocates raised concerns about child-abuse reporting rules and unnecessary removals. The hearing was called by Councilman David Oh, who said he felt racially discriminated against by social workers within the Department of Human Services (DHS), who were investigating him for child abuse following a collarbone injury to his son. Oh said he was teaching his son martial arts, and the inquiry found no wrongdoing.
But for women who have experienced discrimination personally and communally, Oh’s experience revealed nothing new.
Women sometimes try to hide their real feelings to protect their kids, said Ayesha Uqdah, a community health worker who conducts home visits for pregnant and postpartum women through the nonprofit Maternity Care Coalition.
During a home visit two months ago, Uqdah asked her client the 10 questions on the Edinburgh Postnatal Depression Scale survey, one of the most commonly used tools to identify women at risk.
It asks women to rate how often they’ve experienced certain situations in the last seven days, such as “I have been able to laugh” or “I have been so unhappy I have difficulty sleeping.” The answers are tallied for a score out of 30, and anyone who scores above a 10 is supposed to be referred for a formal clinical assessment.
The first time Uqdah conducted the survey with one pregnant client, the woman scored a 22. The woman decided not to go for the mental-health services Uqdah recommended.
A week after having her baby, the woman’s answers netted her a score of zero: perfect mental health.
“I knew there was something going on,” Uqdah said. “But our job isn’t to push our clients to do something they’re not comfortable doing.”
So she waited. About a month later, the woman told Uqdah, “I was lying to you. I really did need services, but I didn’t want to admit it to you or myself.”
“Our job isn’t to push our clients to do something they’re not comfortable doing.”
The woman’s first child had been taken into DHS custody and ended up with her grandfather, Uqdah said. She didn’t want that happening again.
Experts agree that postpartum depression is highly underreported. Many women are not given screening surveys, and even those who are — such as Uqdah’s client — may feel too ashamed or fearful to answer truthfully, said Aasta Mehta, a gynecologist and women’s health adviser for the Philadelphia Office of Maternal, Child and Family Health.
Although the city does not track rates of postpartum depression, Mehta said it could be more prevalent in Philadelphia due to high levels of poverty, a risk factor for postpartum mental illness.
And there’s yet another hurdle for women of color: The tools clinicians use to screen for postpartum depression could be failing them.
Screening tools are not one-size-fits-all
As a lactation consultant, Jabina Coleman shares in some of her clients’ most intimate moments as new moms. So she shares part of herself with those clients, too.
Such as the fact that she suffered from postpartum depression after her first child.
“It was the darkest place,” she said. “I probably cried every day for a year.”
That might be why women often open up to Coleman about their own challenges, telling her such things as they’re “snapping out.”
“It was the darkest place. I probably cried every day for a year.”
The term doesn’t appear on any screening tool, but as soon as she hears it, Coleman knows to ask more.
“Tell me what snapping out looks like for you,” she’ll say. “Are you sleeping? Are you eating?”
Research shows that different cultures talk about mental illness in different ways. African Americans are less likely to use the term “depression,” but may say they don’t feel like themselves, said Georgetown’s Breland-Noble.
It’s also more common for people in minority communities to experience mental illness as physical symptoms. Depression can show up as headaches, for example, or anxiety as gastrointestinal issues.
Since many depression screening tools don’t take those factors into consideration, they’re not as relevant for women of color, Breland-Noble said.
Studies evaluating screening tools used with low-income African American mothers found they don’t catch as many women as they should. Researchers recommend lower cutoff scores for women of color, as those who need help may not be scoring high enough to warrant a follow-up under current guidelines.
The screening tools were developed based on mostly white research participants, Breland-Noble said. “So providers have to do the work of creating the cultural nuances to make these screening tools more relevant.”
For Saleemah McNeil, a reproductive psychotherapist and founder of Oshun Family Center in Jenkintown, that can mean rewording survey questions that leave a lot of room for interpretation.
For example, Question 6 on the Edinburgh screening tool reads: “Things have been getting on top of me.”
“A lot of my black clients will say, ‘I’m managing with four kids, so does that mean things are not on top of me?’ ” McNeil said. “But managing doesn’t mean functioning at full capacity.”
Many of the screening tools also neglect to ask about postpartum obsessive-compulsive disorder or post-traumatic stress disorder. The latter can be especially important for black women, McNeil said, because they have higher rates of serious medical complications and even near-death experiences during pregnancy or childbirth.
“Postpartum mental illness can look different for everyone,” McNeil said.
Auriel Dickey didn’t have thoughts of harming herself or her child, but being away from her daughter — when she returned to work after maternity leave — triggered painful memories.
It brought her back to being 17 years old and watching her mother wither away from breast cancer.
“That grief, it felt like my soul was trying to jump out of my body,” Dickey said.
Years later, when Dickey gave birth to her daughter, Oma, it was a reunion. The sparkle in Oma’s eyes and her mischievous grin brought back the spirit of Dickey’s mother.
But when she had to return to work, Dickey felt everything she lost at 17 was being taken from her again.
It’s not what people traditionally think of as postpartum depression, she said. “But that’s what it was” for her.
Eventually the situation got so bad that Dickey couldn’t hide it. She told her company, and human resources helped her get therapy.
‘He wasn’t taking me seriously’
It took Portia Smith six months after Nelly’s birth to work up the courage to see a doctor about her postpartum depression.
When she told him about crying every day and feeling wracked with anxiety about forgetting to lock the door or turn off a light, he called it normal. Many young moms feel overwhelmed, he said.
“I’m looking at him like it’s been six months and it’s not getting any better,” Smith said. “But he wasn’t taking me seriously.”
Research shows medical professionals are more likely to dismiss the concerns of women and nonwhite patients. Even Serena Williams, a world-renowned tennis star, had to fight for doctors to take her seriously when she experienced postpartum complications.
Women reluctant to seek treatment in the first place conclude it’s not worth getting help.
“You start feeling like everybody’s going to treat you the same way,” Smith said.
But she was determined.
Smith visited another behavioral-health clinic, where she was given therapy and medication. Over the course of several months, she began feeling better. Most important to Smith, she started bonding with her daughter.
Today, Smith and her three daughters go to weekly $5 movies at Studio Movie Grill in Upper Darby and do their makeup together before each major outing.
“I always make us be together,” Smith said. “I make sure we have that connection.”
What you should know about postpartum depression
For help, call the Postpartum Support International helpline at 1-800-944-4773 or send a text to 503-894-9453. You can also call the National Suicide Prevention Lifeline at 1-800-273-8255.